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Get the Facts about Antipsychotic Drugs and Dementia Care
A fact sheet to inform consumers about the use of antipsychotic medications for a person living with dementia and the potential risks associated.
Long Term Care Community Coalition (LTCCC)
Get the Facts about Antipsychotic Drugs and Dementia Care
A guide to stop chemical restraints in nursing homes and other long-term care facilities.
CANHR (California Advocates for Nursing Home Reform) Long Term Care Justice and Advocacy
Fact Facts: What You Need to Know About Antipsychotic Drugs for Persons Living with Dementia
The consumer fact sheet provides family members and others involved in a resident’s care background on the off-label use
of antipsychotics, as well as frequently asked questions regarding loved ones living with dementia.
American Health Care Association
Antipsychotic Medicines for People with Dementia
Brochure on antipsychotic medication and dementia.
Developed by the Georgia Medical Care Foundation in collaboration with the Advisory Board
Dementia: Basic Facts & Information
Ask the Geriatrician: Antipsychotic Drugs, and Alternatives, for Older Adults with Behavioral Problems Due to Dementia
Arthur D. Hayward, M.D. writing for HealthinAging.org
Assessment and Care Planning: The Key to Quality Care
The National Consumer Voice for Quality Long-Term Care
Individualized Assessment with Behavior Symptoms: Consumer Fact
The National Consumer Voice for Quality Long-Term Care
Misuse of Antipsychotic Drugs in Nursing Homes
The National Consumer Voice for Quality Long-Term Care
How to Deal with Challenging Behaviors
A fact sheet providing information about the behavioral and psychotic symptoms (BPSD) individuals with dementia often experience during the course of their disease and approaches to care that are utilized.
Comfort Care Guide
A booklet providing useful information to families and long-term care personnel about Alzheimer’s disease and related dementias, particularly care issues related to the late and final stages.
Illinois Alzheimer’s Association
Palliative Care for People with Dementia: Why Comfort Matters in Long-Term Care
This implementation guide was developed by CaringKind, The Heart of Alzheimer’s Caregiving with the assistance of Comfort Matters®, as an outcome of the pilot project, Palliative Care for Advanced Dementia, Training
and Implementation, the study of effective ways to implement the Comfort Matters® approach in three New York City nursing homes.
Improving Antipsychotic Appropriateness in Dementia Patients
This website includes information and resources to help clinicians, providers, and consumers better understand behaviors and psychosis in people with dementia using
Iowa Geriatric Education Center, University of Iowa
Improving Dementia Care in Nursing Homes: Best Care Practices
A YouTube video facilitated by Morris Kaplan, Operating Partner of Gwynedd Square Nursing Center. In this video, Mr. Kaplan shares how Gwynedd Square was
successful in improving the care of persons with dementia through non-pharmacological, individualized approaches.
From Centers for Medicare and Medicaid Services
Anti-psychotrophic Reality Reductions
PowerPoint presentation providing background and examples for work on inappropriate use of antipsychotic medications.
Kathie J. Gately, BSW
Tapping Into Dementia Patients' Memories Through Vaudeville
This is an article about the Vaudeville Visits program at Saint Barnabas Medical Center in Livingston, N.J., which is run by Healthy Humor, a national nonprofit that primarily sends clowns to pediatric units in hospitals.
New York Times
Dementia Action Alliance
The Dementia Action Alliance is a coalition of passionate people creating a better society for people living with dementia and those who care about them.
AlzhaTV – The First Social Media for Alzheimer’s
The AlzhaTV social media is for Alzheimer’s and other dementia patients who are living either independently in the community, or are residing at assisted living facilities
or are in nursing homes.
Compassionate Touch: How Skilled Human Touch Can Transform Person-centered Dementia Care
An approach to care that assists providers in adopting person-centered practices, reducing the use of antipsychotic medications, and integrating non-pharmacologic approaches to meet the psychosocial and behavioral health needs of elders with dementia.
Dementia Simulation: Methods and systems for simulation of cognitive decline
A white paper describing the background, process and findings of a study completed to test a sensitivity training tool used by professionals and lay public to
help understand the impact of dementia on behavior and emotional status.
Virtual Dementia Tour
ArtFusion - A Non Pharmacologic Approach to Dementia
Alternative approaches to dementia care through the creative arts
The Alzheimer’s Association
Music and Memory
A non-profit organization that brings personalized music into the lives of the elderly or infirm through digital music technology, vastly improving quality of life.
Pines of Sarasota Education Institute
A regional training center for medical professionals, paraprofessionals and at home caregivers in order to provide cutting edge education
and training for a broad range of medical interests, which will improve the quality of care for seniors in residential and home based settings.
Additionally, there is a freely accessible Pines of Sarasota YouTube Channel that
has many English and Spanish videos about person-centered care.
In The Moment
Training series using theater games with creativity exercises that provides caregivers with methods to become better at what they do.
Developed by Karen Stobbe
The Villages of Southern Hills - A Champion for Change
Leadership and care providers at the Villages of Southern Hills in Tulsa, OK support a national and state initiative to reduce
unnecessary antipsychotic medication. In this video, you'll meet Bill, and hear how his providers engaged him in the decision
to reduce and ultimately eliminate the antipsychotics he had been on for years.
SAIDO at Eliza Jennings
The SAIDO method involves a caregiver (called a “Supporter”) trained to work with two older adults (called “Learners”) by engaging
them in simple arithmetic, writing and reading exercises for 30 minutes. Eliza Jennings is the first location in the United States
to offer SAIDO Learning for improving the quality of life for older adults suffering from Alzheimer’s disease and other symptoms of dementia.
For Elders With Dementia, Musical Awakenings
Story on the use of music for nursing home residents with dementia.
National Public Radio
The Farm at Arroyo Grande Care Center
A nursing home in California has built a fully-accessible community garden for residents to grow and harvest their own produce and donate it to citizens
in need. Click the following link for a short YouTube documentary of this amazing program: Harvesting Purpose.
Helping Hands at Mission View Health Center
A health center reintroducing meaning and a feeling of purpose to residents through a community project entitled, “Helping Hands Hand Soap.” This non-profit business is run
entirely by residents. All proceeds go to local charities which are chosen by the residents. Click the following links to watch a wonderful two-part YouTube presentation of this great program: Part 1,
Awakenings at Ecumen
A nursing home that utilizes alternative treatments to re-awaken residents to physical and cognitive vitality and provide these residents with a better quality of life that’s often been severely
diminished by an inappropriate use of antipsychotic drugs.
Dementia Dialogues Brochure
Dementia Dialogues is a 5-session training course designed to educate individuals who care for persons who exhibit signs and symptoms associated with Alzheimer’s disease or related dementias.
University of South Carolina Arnold School of Public Health Office for the Study of Aging
Training Curriculum: Alzheimer’s Disease and Related Dementias
Training for the primary care workforce about dementia, and caring for those affected, is essential. The facts are compelling: currently more than five million Americans live with
Alzheimer's disease. Ultimately, one out of every three Americans will die from Alzheimer's disease or another dementia.
JUST SAY "NO" TO DRUGS AND "YES" TO SUCCESSFUL BEHAVIOR MANAGEMENT
This issue of caring for individuals suffering from memory loss who may exhibit behaviors that are difficult to manage ISN'T JUST ABOUT MEDS! It's about the need
for long term care professionals to value the strengths and social needs of the residents at the same level...no a higher level...than their physical needs. How
to shift the paradigm from the highest priority of "clean, fed and dry" to "enjoyable contented days" is the key to providing excellent care for those entrusted
to our care.
Dementia Care Training Crosswalk
A list of trainings for dementia care.
Compiled by the National Partnership to Improve Dementia Care in Nursing Homes
Hand in Hand
A 6-DVD training series created to provide nursing homes with a training program that emphasizes person-centered
care in the care of persons with dementia and the prevention of abuse.
The Centers for Medicare & Medicaid Services
A research and education initiative - Beatitudes Campus is improving dementia care practices across early, moderate and advanced stages.
Sample Nursing Home Readiness and Preparedness Assessment
A list of questions for direct caregivers and nursing home leadership to
assist facilities in assessing their approach to dementia care.
Developed by the National Partnership to Improve Dementia Care in Nursing Homes
Resident Assessment Tools
Antipsychotic Reduction Form
The PAR (Patient-at-Risk) form from Alliant GMCF (Georgia QIN-QIO) provides a tool to document antipsychotic usage, side effects, and
communication with families.
Alliant GMCF (Georgia QIN-QIO)
Dedicated/Consistent Caregivers Tip Sheet
A tip sheet to assist in creating a nursing home culture that includes dedicated, consistent caregivers.
Shift Huddles Tip Sheet
A tip sheet to assist nursing homes in the understanding of what shift huddles are and how they can be successfully implemented.
Non-pharmacologic Interventions for Agitation and Aggression in Dementia
The final report describes the findings from the systematic review.
Dementia: A Public Health Priority
A report to raise awareness of dementia as a public health priority, to articulate a public health approach and to advocate for action at international and national levels.
World Health Organization and Alzheimer’s Disease International
Latest findings in a series of guides that address issues faced by older adults and their families.
Institute for Aging Research
Non-pharmacological interventions for agitation in dementia: systematic review of randomized controlled trials
This article systematically reviews randomized controlled trial evidence regarding non-pharmacological interventions.
The British Journal of Psychiatry
The art of successful implementation of psychosocial interventions in residential dementia care: a systematic review of the literature based on the RE-AIM framework
The aim of this study was to obtain insight into strategies for successful implementation of psychosocial interventions in the daily residential
dementia care. Using a modified REAIM framework, the indicators that are considered important for effective and sustainable implementation were defined.
International Psychogeriatric Association
Interventions to Reduce Inappropriate Prescribing of Antipsychotic Medications in People With Dementia Resident in Care Homes: A Systematic Review
Several large studies demonstrating an association between treatment with antipsychotics and increased morbidity and mortality in people with dementia.
Translating Innovation to Impact: Evidence-Based Interventions to Support People with Alzheimer's Disease and Their Caregivers at Home and in the Community
This white paper is intended to support deliberations about how to make effective non-pharmacological treatments and care practices available to people
who will benefit from them.
Katie Maslow, MSW, supported by the United States Administration on Aging, the Alliance for Aging Research, and the MetLife Foundation.
Off-Label Use of Atypical Antipsychotics: An Update
An executive summary pertaining to updated information from a 2006 comparative effectiveness review about off-label use of atypical antipsychotic medications.
Agency for Healthcare Research and Quality
DeGowin's Diagnostic Examination
A text to assist clinicians in thinking about symptoms and physical signs to facilitate generation of reasonable, testable diagnostic hypotheses.
LeBlond, RF; DeGowin, RL; Brown, DD
A Systematic Evidence Review of Non-pharmacological Interventions for Behavioral Symptoms of Dementia
A book that documents an evidence-based synthesis program for dealing with behavioral symptoms of dementia.
(Book) Department of Veterans Affairs. Washington, D.C.; 2011.
Transforming Long-Term Care
Every long-term care setting has the potential to foster healthier and happier lives for the older adults who reside there. Mental health practitioners are uniquely
positioned to serve as critical change agents in these communities. This book shows how mental health practitioners can use their full range of skills to create
systems that are more supportive and engaging for residents, while also providing the staff with greater opportunities for professional growth and meaning. To
illustrate what is possible, the authors explore an innovative practice model that incorporates consultation, training, and interdisciplinary team leadership, in
addition to traditional direct care services, to enhance the well-being of older adult residents. Readers will also find practical information about Medicare and
reimbursement for direct mental health services.
(Book) Kelly O’Shea Carney, PhD, ABPP, CMC and Margaret P. Norris, PhD
Alzheimer's Video: A Marriage to Remember
A short documentary, exploring how Alzheimer’s disease has revealed the strength of his parent's marriage.
Banker White (filmmaker)
Ask the DON: Anti-Psychotic Reductions in the Long Term Care Setting
Describes the experiences a Director of Nursing has with antipsychotic reduction efforts.
Kathleen Lynch Scherer, Director of Nursing at Genesis Lebanon Center in New Hampshire
Drugs that May Cause Psychiatric Symptoms
The Medical Letter: On Drugs and Therapeutics. Volume 50 Issue 1301/1302. December 2008.
Sleuthing Troublesome Behaviors
An article that describes the process for revealing the reasons behind troublesome behaviors, associated with Alzheimer’s disease
(Article) Raia, P. Massachusetts Alzheimer’s Association Chapter Newsletter; Spring 2005.
Habilitation Therapy: A New Starscape
A book chapter depicting a new paradigm that places emphasis on active treatment of the symptoms of the dementia through a careful focus on
the utilization of those capacities that remain, particularly the person’s psychological capacity.
(Book chapter) Raia, P. In: Volicer L, Bloom-Charette L, editors. Enhancing the
Quality of Life in Advanced Dementia. Philadelphia: Taylor & Francis; 1999. pp. 21–37.
Dementia Beyond Drugs: Changing the Culture of Care
An electronic book that challenges all care providers, working with individuals that are living with dementia, to undertake a true operational change
in the provision of care, including a decrease in the need for mood-altering drugs.
(Book) Power, G. A. Health Professions Press; 2010.
Updated Beers Criteria for Potentially Inappropriate Medication Use in Older Adults
(Article) American Geriatrics Society. JAGS; 2019.
Restrained Use of Antipsychotic Medications: Rational management of Irrationality
General recommendations pertaining to the reduction in use of antipsychotic medications.
Independent Drug Information Service (IDIS)
Efficacy and Comparative Effectiveness of Atypical Antipsychotic Medications for Off Label Uses in Adults: A Systematic Review and Meta-analysis
An article that describes a systematic review on the efficacy and safety of atypical antipsychotic medications for use in conditions lacking approval for
labeling and marketing by the US Food and Drug Administration.
(Article) Maher, A. et al: JAMA, Vol. 306, No. 12, September 28, 2011.
Making Evidence-Based Psychological Treatments Work With Older Adults
A book that documents prevalent psychological disorders and successful evidence-based treatments.
(Book)Scogin, F. & Shah, A., editors. American Psychological Association; 2012.
Bathing Without a Battle DVD and CD-ROM
A CD that has learning tools for families who have been affected by Alzheimer’s disease and other related disorders.
CD ROM/DVD for purchase from Pioneer Network
Creating Moments of Joy: A Journal for Caregivers
A book about how to look beyond the challenges of Alzheimer’s and focus energy on creating moments of joy.
(Book) Brackey, J. Purdue University Press; 2008
Living Fully with Dementia: Words Matter
(Article) Pinkowitz, J. & Love, K. (eds). 2015. Dementia Action Alliance. Falls Church, VA.
Psychologists in Long-Term Care
A network of psychologists and other professionals dedicated to providing high quality mental health services in long-term care settings, including skilled
nursing homes, rehabilitation centers, assisted living facilities, and congregate housing.
The American Psychological Association - Office on Aging
This site provides links to articles and postings on issues of aging and geropsychology, including links to dementia care guidelines, Alzheimer’s, and psychological
care of older people.
This site lists doctors who are members of the American Association for Geriatric Psychiatry (AAGP).
Geriatric Mental Health Foundation
American Society of Consultant Pharmacists
This site provides information on the vital role consultant pharmacists play in improving dementia care for residents of nursing homes.
Portal of Online Geriatric Education
This website provides a free public repository of a growing collection of geriatric
educational materials. Visitors to the site can search for key words such as
“antipsychotics” to get a variety of links to podcasts, presentations, peer
reviewed articles, and more.
A not-for-profit organization based on the core belief that aging should be a continued stage of development and growth, rather than a period of decline.
Through education, consultation, and outreach, Eden offers person-directed principles and practices that support the unique needs of different living environments.
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