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Related Links

The following is a list of links to organizations and resources that may be helpful when working on the campaign goals (please click on each link for more information):

 Steering Committee Organizations

A broad range of stakeholders in quality long-term care that provide ongoing strategy development, guidance and in-kind support for the campaign.

Resources for Nursing Home Education

American Nurses Association (ANA)
The American Nurses Association is a professional organization representing 2.7 million registered nurses (RNs) through its 54 constituent member associations. The ANA advances the nursing profession by fostering high standards of nursing practice, promoting the economic and general welfare of nurses in the workplace, projecting a positive and realistic view of nursing, and by lobbying the Congress and regulatory agencies on health care issues affecting nurses and the public.

Association of Health Facility Survey Agencies (AHFSA)
AHFSA is a not-for-profit organization that provides information and links to websites where interested persons can learn about licensing, certifying, and inspecting health care providers.

Culture Change Now and Action Pact, Inc.
Action Pact, Inc. is a company of consultants and trainers who provide nursing homes with practical education, products, services, and training materials on Culture Change. The website and magazine for Action Pact, Inc. is titled ‘Culture Change Now.’

Eden Alternative
The Eden Alternative is a movement dedicated to changing nursing homes by focusing on an elder-centered community, and by altering the environment with plants, and increased human and animal companionship. The Eden Alternative believes through altering the nursing home environment, the issues of loneliness, helplessness, and boredom will be alleviated for the elders.

Enhanced Set of Quality Measures Resource Manual
This Quality Measures Resource Manual contains detailed information on the enhanced set of quality measures that are being implemented by the Centers for Medicare & Medicaid Services (CMS) as part of the Nursing Home Quality Initiative (NHQI).

Geriatric Pain
The purpose of this web resource is to share best practice tools and resources with nurses responsible for pain care in older adults who reside in nursing homes.

MedQIC
The Centers for Medicare & Medicaid Services (CMS) has created this comprehensive online resource of quality improvement information for Medicare’s National Quality Improvement Priority Topics. The purpose of MedQIC is to support Quality Improvement Organizations and providers of services to Medicare beneficiaries in finding, using, and sharing quality improvement resources. Information on MedQIC is organized by settings and clinical topics and includes resources for each Priority Topic. You may also search the entire database for literature, tools, and other information related to improving quality of care.

National Association of Health Care Assistance (NAHCA)
The National Association of Health Care Assistance is a professional association representing more than 30,000 CNAs. Their goal is to assure the highest quality of care was provided to the nation’s elders living in nursing homes, achieved by elevating the professional standing and performance of nursing assistants.

National Pressure Ulcer Advisory Panel
The National Pressure Ulcer Advisory Panel (NPUAP) serves as the authoritative voice for improved patient outcomes in pressure ulcer prevention and treatment through public policy, education and research.

The Palliative Care Policy Center (PCPC)
PCPC offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life. We seek to help you make breakthrough change happen in areas that matter to patients and families. A key goal of our activities is to gather information and create a common database that can help improve the experience of dying patients and their families everywhere. We make our findings and lessons learned available to all so that all who aim to improve care for serious illness may succeed.

PHI
PHI works with organizations, providers, educators, and consumers to address workforce issues and develop sustainable solutions for the long-term care setting.

Pioneer Network
The Pioneer Network is a network of people dedicated to transforming nursing homes from institutions into communities through Culture Change. This grassroots movement is focused on supporting elders and those who care for them by collectively implementing Culture Change and altering the culture of aging in America.

Resident Assessment Instrument User's Manual for the Minimum Data Set
The long-term care facility Resident Assessment Instrument (RAI) User’s manual is published by the Centers for Medicare & Medicaid Services. This manual includes updates and clarifications to the processes and clinical items required for the MDS resident assessments. The RAI helps facility staff to gather definitive information on a resident’s strengths and needs, evaluate goal achievement and revise care plans accordingly by enabling the facility to track changes in the resident’s status.

University of Alabama
The Achievable Benchmark of Care (ABC™) system is continually being developed at the University of Alabama at Birmingham (UAB) under an initiative of the Agency for Healthcare Research and Quality (AHRQ). This manual has been written to help practitioners, administrators, payers, and anyone else charged with improving the quality of health care, to use the ABC system.

Resources for Consumer Education

AARP: Advance Directives: Planning for the Future
Do you know what your loved one's health care wishes are at the end of life? Find out how advance directives can help.

AARP: Talking about your Final Wishes
This article on the AARP site offers suggestions on starting the conversation with your family and loved ones about your end-of-life wishes.

American Bar Association Consumer's Tool Kit for Health Care Advance Planning
The Consumer's Tool Kit for Health Care Advance Planning contains self-help worksheets, suggestions and resources to help patients and families clarify and communicate their priorities in the face of serious illness.

Comprehensive End of Life Resources
This comprehensive resource page sponsored by the U.S. National Library of Medicine and the National Institutes of Health which contains links to many useful materials for both patients or caregivers faced with planning end-of-life of care.

Nursing Home Compare
The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country. Important Information on Nursing Home Compare and other resources, including the Guide to Choosing a Nursing Home, and Nursing Home Checklist are also available to help you with your nursing home choice. Use these tools, along with the information you gather during your visits to the nursing homes you are interested in to make your best choice.

Home Health Compare
The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified home health agency in the country. Important Information on Home Health Compare and other resources, including What is Home Health Care, Medicare Coverage also available to help you with your home health agency choice. Use these tools, along with the information you gather during your visits to the home health agencies you are interested in to make your best choice.

HHQI National CampaignHome Health Quality Improvement (HHQI)
The Home Health Quality Improvement (HHQI) National Campaign is a grassroots movement designed to unite home health stakeholders and multiple health care settings under the shared vision of reducing avoidable hospitalizations and improving medication management.

National Hospice and Palliative Care Organization: Caring Connections
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life.

OASIS
The Outcome Assessment and Information Set (OASIS) data set information contains detailed information on the publicly reported quality measures that are being implemented by the Centers for Medicare & Medicaid Services (CMS) as part of the Home Health Quality Initiative (HHQI).

PHI
PHI works with organizations, providers, educators, and consumers to address workforce issues and develop sustainable solutions for the long-term care setting.

Pennsylvania Restraint Reduction Initiative and Untie the Elderly
Kendal Outreach, LLC provides resources and programs to agencies and organizations dealing with elder care and quality improvement. Two of the initiatives for which Kendal Outreach, LLC provides programs and Services are: the Pennsylvania Restraint Reduction Initiative, designed to provide education on safe practices; and the Untie the Elderly initiative, with programs to help foster independence for elders.